A Couple Trying to Make It Between the Sheets.
Adult Content: 18 and older please!

Wednesday, July 19, 2006

Stepping onto my soap box...

I've never considered myself a political person.  Honestly I don't give a damn as all bureaucrats are, in my opinion evil and out to only help themselves.  Cynical I know.  I don't vote due to apathy and therefore I have no right to complain about who is in office, but I would like to say a few things about something our president is going to do today: veto the embryonic stem cell research bill.
 
I have been a type I diabetic for more then 27 years.  In that time, I have taken more then 26,000 insulin injections, had roughly 40,000 finger sticks to check blood glucose, and have spent approximately $75,000.00 in medical care procedures and supplies.  As a child growing up in a hick town, I endured ridicule, discrimination, and segregation.  I was always different and and often treated as if I was breakable.  I was rarely invited over for dinner and few risked the responsibility of asking me over for the night.  Did I have a bad childhood? No.  I think that all in all I had a pretty good childhood.  But it wasn't easy, not that any one's is but I was held back because of my disease.  However, if Jane and I were to have a baby, there is a 50% chance that that baby would be born diabetic.  That is the main reason I don't want children.  I'm not sure I could handle putting a child through what I went through.  It just seems unfair.
 
According the the ADA (American Diabetes Association),  more then 20 Million people in the U.S. have diabetes.  That is 7% of the population - nearly 1 in 10.  1 in 3 children will develop diabetes in his/her lifetime.  If there was anything that we could do to fix this, anything that could be done so that maybe those diagnosed would not have to suffer, shouldn't we do it?  The good news is there is something we can do.  The bad news is that by the time you read this, it is likely that our president has already vetoed that possibility.
 
There are likely those reading this and thinking that there are other ways to support research and finding a cure - ie: Adult stem cells.  I agree completely, but shouldn't we be doing everything in our power?  By vetoing this bill, President Bush is preventing families from donating embryos to research.  What will likely happen to these embryos now?  Nothing.  They will be discarded.  These embryos are just sitting in fertility clinics waiting to be tossed! 
 
The President states that he is "honor bound" and that he "morally" must stop this bill.  I don't recall his job to be to impart his morals on the U.S. citizens.  It passed the senate, it passed the house, polls show that the majority of the people are in agreement of its passing, and yet one small man will stand in its way and slow the progress towards a cure.  And its not just Diabetes.  He is slowing the progress for a cure to Cancer, Heart Disease, Alzhimers, Parkinson's, Lou Gehrig's Disease, spinal chord injuries, Glaucoma, Macular Degeneration and a plethora of otherwise incurable diseases.
 
I just wanted to say, thank you Mr. President.  I sincerely hope that not you nor anyone you love is ever diagnosed with any of the above.  But I do hope that you would go to the hospitals and explain to the children with leukemia or to the families whose parents no longer recognize who they are, why your morals are condemning them.
 
Stepping off my soap box...

 

 

6 Comments:

  • I learned this last week that there are companies out there that store/save stem cells from a baby's cord.

    I think they are called blood cord banks. The sad part is it costs around $1000 upfront and roughly $100 a month to save, but they can be used for the child or anyone in your family.

    Your own personal stem cells that will match your type. Amazing.

    I wish doing this was mandatory or a gov't program to not let them go to waste.

    As far as the president, I think his stance was to be strongly anti-abortion and not anti-stem cells. I understand what you're saying too. My father is diabetic.

    By Blogger Mr. Husbland, at 11:32 AM  

  • I agree regarding the bank, however the most useful stem cells are called pluripotent stem cells. These cells can be cultivated into anything, where as even umbilical chord stem cells have limitations.

    Also, I find it ironic that being pro-life precludes you from helping those already living.

    By Blogger John Doe, at 11:49 AM  

  • I'm with you, both in your view about government officials and stem cell research. It's pretty hypocritical of him to ban stem cell research (because it's all about the innocent babies) and yet be so supportive of killing both overseas (war) and here (via capital punishment.

    The needs of the many outweigh the needs of the few.

    By Blogger MrManicDepressive, at 8:00 AM  

  • When i had all three of my kids they took the stem cells. It's standard over here (UK)txumhj- well they ask if you agree first! I have no idea actually what happens to it.

    By Blogger Jemima, at 8:48 AM  

  • AMEN! I know I do not give a flying fuck what Bush's morals are! And how immoral is it to not try and do all you can to fight disease! Shame on him!

    xoxo!
    andi

    By Blogger sxuly yrs, at 10:27 PM  

  • hi, we don't know each other; I just happened across your blog via HNT. please take my comments here as only my thoughts, rather than 'advice' or anything like that.

    first, I do agree that everything that *can* be done, *should* be done - ie, stem cell research... it almost seems criminal to veto it, doesn't it?

    my youngest son has type 1 diabetes also, diagnosed when he was 3 (he's just turned 13 now). I'm thinking it's even better now for diabetic kids than - based on your description - what it was like when you were a kid (especially because diabetes is so prevalent now, most people know at least a little something about it). my son's elementary school experience was almost completely positive, as far as how kids accepted him, and support was great for him (emotionally & practically speaking both) in his schools. people see he's so normal in every way, and most kids see him as very cool as well, so overall diabetes has not been a 'bad' experience, socially-speaking, for him.

    I also feel that having diabetes has brought my son to certain greater understandings & tolerances than many children these days have... I don't believe he's 'better' than anyone else, but I do believe he's a better person within himself, overall, for having had diabetes (regardless, I still wouldn't have wished it on him if there'd been a choice!).

    from a different angle, one of my son's best friends' dads didn't understand all the possible complications of diabetes at first, so Bren was always welcome to stay over night there, anytime. after the dad got more complete information, he suddenly got nervous about possible problems & didn't want my son to stay overnight as much until/unless he knew more about caring for my son during visits. thing is, my son is very involved in the management of his own diabetes, we've been educating him since he got it, and he's been doing his own finger pricks & insulin injections (3/day - more with any needed corrections) with supervision since age 7. we have measures in place to make sure he'll be okay & can get help if necessary no matter where he's at. with discussion, the friend's dad finally realized: nothing had changed except his own perception of the whole issue. some people just tend to freak a bit when they finally understand the possible problems &/or just see what they *don't* understand; it's human nature.

    overwhelmingly, though, we have found most people are completely willing to be educated as to our son's condition; we have a little 'information kit' we send with him when he has overnights with friends - it contains information on diet, schedule, injections & such, so they know about Bren's specifics & how to respond if anything happens &/or he needs help, and the fact that he can actually take care of himself for the most part. and yes - he overdoes it with junk sometimes, as with any kid, but he also has insulin for corrections if/when necessary - and he knows how/what to do about it all himself.

    I can understand your hesitation about having children with the possibility of them developing diabetes - absolutely - but since it's not an absolute that they will get it, perhaps consider this thought also along the way: we haven't been able to find *any* connection to diabetes in our families other than my grandmother who had type 2 (which - if it was hereditary - would've meant *I* would've been diabetic, not necessarily my kids). from all we can tell so far, my son's antibodies just went a little crazy & attacked/killed off the insulin-making cells by mistake (likely when he got a virus), for whatever reason.

    my point is just that anything can happen to anybody, with or without a pre-disposal to certain conditions... maybe your children have a greater chance to develop diabetes, but now you *also* have the benefit of better knowledge about diet, exercise, the signs of onset, etc., so you could keep your children as healthy as possible before any conditions actually develop (and have a head-start if conditions did develop). science now also knows so much about the genes & such involved with predisposition/developing diabetes, and they're working on ways to help young people avoid it, who are genetically at risk of developing diabetes.

    even with legislation against stem cell research & such, there are SO many scientists researching diabetes & a cure... I firmly believe that - possibly even in my son's lifetime - there WILL be a cure &/or actual ability to avoid developing diabetes altogether even for those at risk.

    so about my disclaimer at the beginning of this... I just wanted to offer a hopeful point of view, rather than presuming to offer advice or try to change your mind or anything :). it's just a lot better for kids now than it was when you were a kid, and I hope you will consider that in your decision making process, if you actually want to consider having kids sometime.

    good luck & all the best, with your own condition & whatever you do (or don't do) about having kids.

    (and sorry - I DO tend to get long-winded in strangers' comments! and I hope you don't mind me throwing in my $5.25 about it. feel free to delete me, of course)

    By Blogger loz, at 4:22 PM  

Post a Comment

<< Home


 
eXTReMe Tracker